AUS-mTBI: designing and implementing novel health informatics approaches to improve outcomes for people with mild TBI across Australia (21922)
In Australia, there are approximately 180,000 mild traumatic brain injuries (mTBI) each year. Mild TBI can have long-lasting negative impacts on individuals, their families, and society. Management of people with mTBI is hindered by poor prediction of those at risk of delayed recovery and inconsistent treatment and care. The AUS-mTBI national consortium has established a multi-faceted online platform that uses web-based app technology to gather data to aid reliable prediction of outcome and improved management of mTBI. AUS-mTBI aims to recruit 5000 people who have experienced mTBI in the community. Self-reported demographic, injury circumstance, health status, mTBI symptomatology and care management data will be collected for all participants. The presence of persistent post-concussion symptoms will be assessed fortnightly for 3 months after injury and then monthly until symptom resolution using the Rivermead Post-Concussion Questionnaire (adults), or the Post-Concussion Symptom Inventory (< 18 years). Through the online platforms, participants will also be provided with an evidence-based recovery program, personalised to their own circumstances, and be able to track their symptom changes over time. AUS-mTBI is the first study of its kind in the world to integrate best practice, cutting edge research and patient recovery experiences for people with mTBI. The data will be used to inform our understanding of predictors of recovery after mTBI and use machine learning models to predict those at risk of poor outcome and enhance care pathways to reduce the public health burden of mTBI.