AUS-mTBI: designing and implementing novel health informatics approaches to improve outcomes for people with mild TBI across Australia — The Association Specialists

AUS-mTBI: designing and implementing novel health informatics approaches to improve outcomes for people with mild TBI across Australia (21922)

Jemma Keeves 1 2 3 , Rachel Singer 2 , Sarah Hellewell 2 3 , Natasha Lannin 4 5 , Karen Caeyenberghs 6 , Elena Chebkasova 7 8 9 10 , Michael Makdissi 11 12 13 , Gary Mitchell 14 15 16 17 , Karen Barlow 18 19 , Nick Rushworth 20 , John Gilroy 21 , Elizabeth Armstrong 22 , Trish Ratajczak 23 , Kirsten Vallmuur 15 24 , Patrick Kwan 1 5 25 , George Charalambous 26 , Jennie Ponsford 27 28 , Belinda Gabbe 1 , Vicki Anderson 29 30 , Melinda Fitzgerald 2 3
  1. Pre-Hospital, Emergency and Trauma, School of Public Health and Preventative Medicine , Monash University, Melbourne, Victoria, Australia
  2. Curtin University, Perth, WA, Australia
  3. Perron Institute for Neurological and Translational Science, Nedlands, WA, Australia
  4. Alfred Health, Melbourne, VIC, Australia
  5. Department of Neurosciences, Central Clinical School, Monash University, Melbourne, VIC, Australia
  6. Cognitive Neuroscience Unit, School of Psychology, Deakin University, Melbourne, VIC, Australia
  7. Melbourne School of Population and Global Health, The University of Melbourne, Parkville, VIC, Australia
  8. Centre for Adolescent Health, Murdoch Children’s Research Institute, Parkville, VIC, Australia
  9. National Drug Research Institute, Curtin University, Perth, WA, Australia
  10. School of Population and Global Health, University of Western Australia, Perth, WA, Australia
  11. Florey Institute of Neuroscience and Mental Health, Melbourne, VIC, Australia
  12. Latrobe University, Melbourne, VIC , Australia
  13. Australian Football League, Melbourne, VIC, Australia
  14. Emergency and Trauma Unit, Royal Brisbane and Women's Hospital, Brisbane, QLD, Australia
  15. Jamieson Trauma Institute, Brisbane, QLD, Australia
  16. Royal Brisbane Clinical Unit, University of Queensland, Br, QLD, Australia
  17. Queenland Rubgy Union, Brisbane, QLD
  18. Queensland Children's Hospital, Brisbane, QLD, Australia
  19. Centre for Children's Health Research, University of Queensland, Brisbane, QLD, Australia
  20. Brain Injury Australia, Sydney, NSW, Australia
  21. Aboriginal and Torres Strait Islander Research, Faculty of Medicine and Health, The University of Sydney, Sydney, NSW, Australia
  22. School of Medical and Health Sciences, Edith Cowan University, Perth, WA, Australia
  23. Murdoch University, Perth, WA, Australia
  24. Centre for Healthcare Transformation, Australian Centre for Health Services Innovation, Queensland University of Technology, Brisbane, QLD, Australia
  25. Department of Neurology, Alfred Health, Melbourne, VIC, Australia
  26. Curve Tomorrow, Melbourne, VIC, Australia
  27. Turner Institute for Brain and Mental Health, School of Psychological Sciences, Monash University, Melbourne, VIC, Australia
  28. Monash Epworth Rehabilitation Research Centre, Epworth Healthcare, Melbourne, VIC, Australia
  29. Clinical Sciences Research, Murdoch Children’s Research Institute, Melbourne, VIC, Australia
  30. Psychology Service, The Royal Children's Hospital, Melbourne, VIC, Australia

In Australia, there are approximately 180,000 mild traumatic brain injuries (mTBI) each year. Mild TBI can have long-lasting negative impacts on individuals, their families, and society. Management of people with mTBI is hindered by poor prediction of those at risk of delayed recovery and inconsistent treatment and care. The AUS-mTBI national consortium has established a multi-faceted online platform that uses web-based app technology to gather data to aid reliable prediction of outcome and improved management of mTBI. AUS-mTBI aims to recruit 5000 people who have experienced mTBI in the community.  Self-reported demographic, injury circumstance, health status, mTBI symptomatology and care management data will be collected for all participants. The presence of persistent post-concussion symptoms will be assessed fortnightly for 3 months after injury and then monthly until symptom resolution using the Rivermead Post-Concussion Questionnaire (adults), or the Post-Concussion Symptom Inventory (< 18 years). Through the online platforms, participants will also be provided with an evidence-based recovery program, personalised to their own circumstances, and be able to track their symptom changes over time. AUS-mTBI is the first study of its kind in the world to integrate best practice, cutting edge research and patient recovery experiences for people with mTBI. The data will be used to inform our understanding of predictors of recovery after mTBI and use machine learning models to predict those at risk of poor outcome and enhance care pathways to reduce the public health burden of mTBI.